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  • Boy, family aim to raise $10,000 for SMA research
    Sylvain LeVasseur-Portelance has raised more than $5,000 for spinal muscular atrophy research in two years.

  • REGENX Biosciences and AveXis Enter Into Exclusive License Agreement for the Development of Treatments for Spinal ...
    REGENX Biosciences, LLC and AveXis, Inc. announce that they have entered into an exclusive agreement for the development and commercialization of products to treat Spinal Muscular Atrophy using NAV rAAV9 ...

  • Secaucus meatball benefit to raise funds to fight spinal muscular atrophy
    At just 7 months and 16 days old, Daniel Cevallos lost his fight with a fatal disease known as spinal muscular atrophy or SMA.

  • Three ‘Emerging Investigator’ Grantees Named by FightSMA and Gwendolyn Strong Foundation
    Each winner receives $27,500 for Spinal Muscular Atrophy (SMA) research. (PRWeb April 11, 2014) Read the full story at

  • Wallsend tot Kacie Martin defies the odds to celebrate second birthday
    Kacie Martin, of Wallsend in North Tyneside, has rare muscle wasting illness spinal muscular atrophy Type 1 meaning she has been in and out of hospital all her life

  • Second “Bug Run” to benefit children with Spinal Muscular Atrophy
    OLATHE, Kan. – A year ago, we told you about a three-year-old Olathe boy who was born with a deadly...

  • Silver Spring woman competing for local hero contest -- Gazette.Net
    At 5 a.m., Jennifer Malatesta wakes up to get ready for work, with her husband’s help. For many, it would be a 30-minute drive from her apartment in downtown Silver Spring to Rockville, where she works.

  • Locals jailed, raise money for MDA
    Chris Borjes, who was diagnosed with spinal muscular atrophy at 2 years old, has never been able to walk.

  • Prayers Needed: Baby diagnosed with Spinal Muscular Atrophy
    Baby Autumn hasn't even reached the halfway point to her first birthday and she has had to fight for every one of those moment in her short life.

  • ‘For every bad day, there’s a thousand good ones’
    Area resident competes for Ms. Wheelchair USA title By Megan Hopps SUN PRESS Newspapers   Shimmer and shine and a whole lot of strength. That’s what it takes to be the next Ms. Wheelchair USA.   No one knows this better than Brooklyn Park resident Jen Onsum. “I was diagnosed with Spinal Muscular Atrophy when [...]

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