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  • Go Shout Love donates to help children receive medical care
    The 1-year-old girl, Nella Grutter, has pale skin, bright blonde hair and Type 1 spinal muscular atrophy, a neurological disease causes muscle damage and eventually leads to death.

  • Motorcycles to ride for Spinal Muscular Atrophy
    MT. CARMEL—Linda Shelton is organizing a benefit motorcycle ride in honor of her late granddaughter, Kaylynn Arens, who died from complications of spinal muscular atrophy last year.

  • Assisted Suicide Strongly Criticized in UK House of Lords
    Peers have passionately spoken out against a UK law to introduce assisted suicide, with one disabled baroness describing the proposals as a “runaway train”. Baroness Campbell of Surbiton, who uses a wheelchair and has spinal muscular atrophy, said: “My own experience of progressive deterioration has taught me that there is no situation that cannot be […]

  • Raeford family shares story of baby's deadly disease
    Thomas "Bubby" Mosher Jr. was diagnosed with spinal muscular atrophy, a rare disease that affects about one in 8,000 babies.

  • Ever hopeful — Girl with spinal muscular atrophy still smiling
    Aaron Ribble found out just a few months ago, His two-year-old daughter Katie has spinal muscular atrophy, or SMA. SMA is a genetic disease that affects the motor neurons in the spine that are vital for ...

  • Special Effect's Controllers Enable Every Gamer To Enjoy Video Games
    Lee Knight was diagnosed with spinal muscular atrophy when he was four years old. This genetic disease causes muscle weakness over time due to the deterioration of nerve cells that connect the brain to the body’s muscles. Mental abilities are unaffected by the disease, but over time muscle movement is progressively limited, which is what happened to Knight. [This feature originally appeared in ...

  • Tania Clarence Admits Killing Three Disabled Children at New Malden Home
    Tania Clarence has admitted killing her three disabled children at their New Malden home. Appearing at the Old Bailey, Clarence pleaded guilty to the manslaughter of four-year-old Olivia, and three-year-old twins Ben and Max by diminished responsibility. They all suffered from Spinal Muscular Atrophy, a genetic disorder which leaves children with little control of their movements and can ...

  • The Bristol Post published Pupils bid to get electric wheelchairs for siblings
    GETTING up and dressed and walking to school is something that most children take for granted. But for brother and sister Archie and Scarlett Parker, even the most simple of tasks are not so easy.Archie, 10 and Scarlett, eight, both suffer from type three Spinal Muscular Atrophy.The condition causes severe muscle weakness and in most cases sufferers are eventually confined to a wheelchair.Both ...

  • Benefit concert helps local youths
    Each year, Brian Chute has watched as the Annual Benefit Concert for the Cade and Katelyn Fund for Spinal Muscular Atrophy has grown.

  • Arizona residents to vote on access to experimental drugs
    Jayke Collier will turn 4 years old at the end of July. Family pictures and movies show a happy little boy who likes to sing and dance and pal around with his older brother.

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