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MT. CARMEL—Linda Shelton is organizing a benefit motorcycle ride in honor of her late granddaughter, Kaylynn Arens, who died from complications of spinal muscular atrophy last year.
The 1-year-old girl, Nella Grutter, has pale skin, bright blonde hair and Type 1 spinal muscular atrophy, a neurological disease causes muscle damage and eventually leads to death.
An Ipswich mother-of-two today spoke of her gratitude after a fun day held in aid of her young son who suffers from a rare genetic condition raised more than £8,000.
Aaron Ribble found out just a few months ago, His two-year-old daughter Katie has spinal muscular atrophy, or SMA. SMA is a genetic disease that affects the motor neurons in the spine that are vital for ...
Thomas "Bubby" Mosher Jr. was diagnosed with spinal muscular atrophy, a rare disease that affects about one in 8,000 babies.
It’s difficult for Marc Charest to get around.The 52-year-old suffers from oculopharyngeal muscular dystrophy, or OPMD, and distal spinal muscular atrophy.
Tania Clarence has admitted killing her three disabled children at their New Malden home. Appearing at the Old Bailey, Clarence pleaded guilty to the manslaughter of four-year-old Olivia, and three-year-old twins Ben and Max by diminished responsibility. They all suffered from Spinal Muscular Atrophy, a genetic disorder which leaves children with little control of their movements and can ...
Each year, Brian Chute has watched as the Annual Benefit Concert for the Cade and Katelyn Fund for Spinal Muscular Atrophy has grown.
Peers have passionately spoken out against a UK law to introduce assisted suicide, with one disabled baroness describing the proposals as a “runaway train”. Baroness Campbell of Surbiton, who uses a wheelchair and has spinal muscular atrophy, said: “My own experience of progressive deterioration has taught me that there is no situation that cannot be […]
GETTING up and dressed and walking to school is something that most children take for granted. But for brother and sister Archie and Scarlett Parker, even the most simple of tasks are not so easy.Archie, 10 and Scarlett, eight, both suffer from type three Spinal Muscular Atrophy.The condition causes severe muscle weakness and in most cases sufferers are eventually confined to a wheelchair.Both ...
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