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Sylvain LeVasseur-Portelance has raised more than $5,000 for spinal muscular atrophy research in two years.
REGENX Biosciences, LLC and AveXis, Inc. announce that they have entered into an exclusive agreement for the development and commercialization of products to treat Spinal Muscular Atrophy using NAV rAAV9 ...
At just 7 months and 16 days old, Daniel Cevallos lost his fight with a fatal disease known as spinal muscular atrophy or SMA.
Each winner receives $27,500 for Spinal Muscular Atrophy (SMA) research. (PRWeb April 11, 2014) Read the full story at http://www.prweb.com/releases/sma/grant/prweb11756027.htm
Kacie Martin, of Wallsend in North Tyneside, has rare muscle wasting illness spinal muscular atrophy Type 1 meaning she has been in and out of hospital all her life
OLATHE, Kan. – A year ago, we told you about a three-year-old Olathe boy who was born with a deadly...
At 5 a.m., Jennifer Malatesta wakes up to get ready for work, with her husband’s help. For many, it would be a 30-minute drive from her apartment in downtown Silver Spring to Rockville, where she works.
Chris Borjes, who was diagnosed with spinal muscular atrophy at 2 years old, has never been able to walk.
Baby Autumn hasn't even reached the halfway point to her first birthday and she has had to fight for every one of those moment in her short life.
Area resident competes for Ms. Wheelchair USA title By Megan Hopps SUN PRESS Newspapers Shimmer and shine and a whole lot of strength. That’s what it takes to be the next Ms. Wheelchair USA. No one knows this better than Brooklyn Park resident Jen Onsum. “I was diagnosed with Spinal Muscular Atrophy when [...]
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